Support Team Bios

Ross McCray

Founder, McCray Foundation

mccray.org

A father of four who built VideoAmp into a $1.7B+ company, then pledged the majority of his wealth to science through the McCray Foundation. He founded Thesis, which builds autonomous wet labs and computational biology to accelerate discoveries, the engine that can make one-of-a-kind cures possible for children the system overlooks.

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Dr. Bruce Gelb

Dr. Bruce Gelb

Gogel Family Chair · Director, Mindich Child Health & Development Institute

Icahn School of Medicine at Mount Sinai

A world authority on Noonan syndrome and the RASopathies — the very family of disorders Delaney was born with. His lab uses patient-derived stem cells to model rare heart conditions and hunt for therapies where none yet exist.

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Kiran Musunuru, M.D., Ph.D.

Kiran Musunuru, M.D., Ph.D.

Barry J. Gertz Professor · Co-Director, Penn Medicine/CHOP Orphan Disease Center

Perelman School of Medicine, University of Pennsylvania

A pioneer of CRISPR gene-editing therapies for cardiovascular disease, working to turn a single corrective edit into a lifelong cure — and to extend the same toolkit to rare diseases once deemed too small to treat.

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Dr. Barry Byrne

Director, Powell Gene Therapy Center

University of Florida

A pediatric cardiologist who leads one of the most experienced gene therapy programs in the world, carrying corrective genes into the cells that need them. His team has treated more patients with this approach than any other program in the United States or Europe.

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Dr. Kristen Wigby

Dr. Kristen Wigby

Clinical Geneticist · Precision Medicine Clinic

Rady Children's Hospital-San Diego

A clinical geneticist and dysmorphologist who co-founded and directs Rady Children's Precision Medicine Clinic. Her work turns rapid genome sequencing into an actionable diagnosis — the first step toward a therapy that has never been made before.

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Dr. Matt Bock

Dr. Matt Bock

Pediatric Cardiologist · Medical Director, Heart Failure & Transplantation

Rady Children's Hospital-San Diego

A pediatric cardiologist who leads the heart failure and transplantation program at Rady Children's Hospital-San Diego, caring for children whose heart muscle has grown too thick to pump safely.

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Ryan J. Taft, Ph.D.

Ryan J. Taft, Ph.D.

Chief Scientific Officer · Head of Precision Medicine, EspeRare

Genetic Alliance

A geneticist who leads global programs expanding access to advanced genomic diagnostics and tailored therapies for children with rare and undiagnosed diseases. He is the scientific founder of iHope, a worldwide network bringing clinical genome sequencing to patients who would otherwise go untested, and leads a consortium delivering custom antisense therapies to children outside the United States. Previously he held senior genomics leadership roles at Illumina and Tempus AI.

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Robyn Saskia Cortese, PharmD

Robyn Saskia Cortese, PharmD

Pediatric Clinical Pharmacist · Co-Founder

Rubinstein-Taybi Syndrome Foundation

A pediatric clinical pharmacist, Air Force veteran, and rare disease advocate. Robyn earned her Doctor of Pharmacy degree from East Tennessee State University in 2013 and commissioned as a Captain in the United States Air Force, where she led the inpatient pharmacy at Keesler Air Force Base in Mississippi. After marrying her husband, a naval aviator, she moved to San Diego in 2016 and subsequently began her career in pediatric pharmacy at Naval Medical Center San Diego.

In 2019, Robyn welcomed her second son, Michael, and began her own rare disease journey as the mother of a child with Rubinstein-Taybi syndrome. That experience brought a deeply personal dimension to her work, connecting her clinical background with a commitment to research, family support, and advocacy.

In 2025, she joined the Scientific Advisory Board of the Epilepsy Foundation’s San Diego chapter and delivered the keynote address at its annual education conference. In 2026, she co-founded the Rubinstein-Taybi Syndrome Foundation alongside two fellow RTS mothers. Through her clinical practice and advocacy, Robyn works to connect science with the needs and priorities of rare disease families.

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Jessica Beatus

Jessica Beatus

Doing Well by Doing Good

doingwellbydoinggood.agency

Jessica helps businesses and non-profits succeed through purpose-driven strategies and partnerships, with 15 years of experience across media, tech, and social impact.

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